Usually Mason takes baby steps during his recoveries, but this time he seems to be taking giant steps! He hasn't been on O2 for 24 hours now!!! His saturations have been 96-99% on room air which is absolutely perfect. What a blessing his new heart is! It has truly given him new life. Mason had been on full-time O2's for a year now, so this is soooo exciting.
Today, the nurse and I took Mason on a walk around the 2nd and 3rd floors. I got him to leave his mask on even, because I told him if he wanted to go for a walk in his stroller then he had to wear a mask. And he did! He was so happy to go for a walk. He was waving to everyone saying "Hi!". He has smiled a lot more today and I love it! He has also enjoyed playing more with toys today. His energy is starting to increase slowly since surgery......I can't wait to see him walking soon!This afternoon Mason was discharged from the CVICU and moved to 3 West (like the 3rd floor- surgical unit at Primary's). All the nurses were cheering Mason on when we left. We have had excellent nurses here that have taken great care of Mason both pre-and post-transplant. (Just like our great nurses at Primary's.) Our new private room is quite a bit roomier and I requested Mason a regular bed so I can snuggle with him to get him to sleep.
We will be here for 1-2 more weeks as the docs monitor his medicine levels (especially his cyclosporin level), watch his heart function etc....and Mason will have his first scheduled heart cath/ biopsy (to check for rejection) on Tuesday. I must say I am nervous about the biopsy. I'm holding on to my FAITH and HOPE, that has carried me along thus far, to prepare me for Tuesday. Praying that Mason will continue forward with more giant steps.
Mason needs some snuggling. I will update again soon.
19 comments:
John 9:1-3. What an amazing ride! You have inspired all of us. Our prayers continue to rain down blessings upon you guys!!
GREAT NEWS! Mason and your family continue in my thoughts and prayers.
That is so exciting to be able to take him for walks, and see how happy he is. Just remember it has been a long road, but right around the corner you will be in your own home with him running around his own yard. I can't wait to see pictures of that. Keep getting stonger Mason, and hold on momma. :)
Our whole family is cheering too! We are so happy to hear Mason is doing so well. We are praying for Mason this Tuesday. You are AMAZING Summer.
Hi Summer, I've been following your little family and Miracle Mason for a while now but have never commented. My family and I also live in Highland and my four year old son Jared, had a kidney transplant just after he turned two. I just wanted to let you know that we are praying for you and we are so grateful that Mason is doing so well and finally received his beautiful angel heart! The transplant journey is such a surreal experience! I still can't believe that my Jared has a beautiful angel kidney that has given him life! It is such a blessing! We are still praying for you and Mason and are hoping that everything continues to go so smoothly. Hang in there!
Congratulations!!!!!!! Mason is a champion!!! glad to hear excellent news about him. :) you guys made my day today.
Congratulations!!!!!!! Mason is a champion!!! glad to hear excellent news about him. :) you guys made my day today.
I have to get my little Mason fix everyday. I am so ex tactic at his recovery. It is so wonderful to sit back and see Gods wonders. Good job Mason you are doing awesome!! We will send extra prayers your way for the cath, they are very nerve racking. I remember thinking, why was I so nervous about the heart cath when I had just sent my son for a heart transplant and we had gotten through that. It will be ok, he will do great.
Mason looks great! It's hard to believe he has come so far in such a short time. Keep up the good work Mason.
Giant steps to match his giant spirit. Way to go Mason!
What a sweet and AMAZING little guy! He looks so good! I hope and pray that all will continue to go smoothly as you finish up your heart journey in Ca.!!
Thank you SO much for updating daily!! I am always checkin in. I LOVE that Mason is making GIANT steps and he will absolutely be running after his brothers soon! I can't wait to see how great he looks.. three weeks!! Praying for a great biopsy on Tuesday!
Good choice on the big hospital bed.. we always do the same thing!
Oh my gosh! Off O2's and out of bed! I am SO amazed! This is WONDEFUL!!!!!
I am just catching up after a spring break vacation! What wonderful news and tears of joy!!! I am so humbled and amazed watching God work through you in delivering Mason a new heart. Today is Ava's 9th birthday- a day we never thought we'd see, but thanking God for His grace and miracle in bringing her this far. May He continue to watch over your family and bring you all safely together again soon.
Words just can't express how thrilled I am each time I check for an update and things keep getting better and better! Yea Mason!!!
Wish I could give that sweet boy a big hug. You are both such an inspiration
for every Mom and Dad waiting for their child's new heart and the power of Prayer.
Mason lookes AMAZING! YEAH AGAIN! Summer.. we can be nervous together. Madison has her heart biopsy tomorrow (Tuesday) as well. I'll be thinking about you lots. Good luck tomorrow. Keep us posted!
Miracle Mason.. thank you for being such an inspiration to all of us. You are my hero.
Just gave this verse to Kristi and Gabriella, maybe you can use it too. Psalm 4:8 "I will lie dwon in peace, for you alone, O Lord, make me dwell in safety." Jesus will keep MIRACLE Mason safe tomorrow and the rest of his days. :) Still praying though! :) So happy he got to take a walk and get out of his room! That is so awesome! THANK YOU JESUS!!!!
ANgie's Support team
I always feel happier after I check your blog because of your hope and love for your kids that has paid off so well. It's so much fun to see him benefitting from all of your faith and care. It's wonderful to watch him progress Summer! Congratulations again.
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