Wednesday, April 14, 2010

"Well, if it takes a miracle why not?"

(Here's my sweet little chubby cheeked Miracle Boy
getting some much needed rest.)

A dear friend e-mailed me this quote on Easter Sunday as she followed Mason's transplant on the blog and I absolutely love it:

"If you are helpless, He is not. If you are lost, He is not. If you don't know what to do next, He knows. It would take a miracle, you say? Well, if it takes a miracle, why not?"

~President Boyd K. Packer~

Ultimately, through Mason's journey I have learned every word of this quote to be true. I not only believe in miracles, I KNOW MIRACLES HAPPEN! I also truly KNOW that He, our Father in Heaven, will guides us towards those Miracles. I am grateful for the power of prayer and His guidance that has brought us to this most miraculous chapter of our journey. The chapter of Mason's Easter Miracle!!!

Talk about a miracle. Just look at these amazing numbers Mason has with his new angel Easter heart:

The green is heart rate.....perfect
The blue is O2 sats.....this is the miracle. Most of us sat 92% and above. Mason has always been between 70-80% since he was born. He must feel great now!!!
The white is respiratory rate......perfect range.

Today's update:
Mason's white blood cell count and CRP level are elevated a little more from yesterday's. We still aren't sure why, but the doc's are continuing the antibiotics. Results from the blood cultures will be back tomorrow so then we will know if this is a bacterial infection or not. At least no more fevers though. The biopsy will be held off until both of these blood levels come down. Dr. Berstein still doesn't believe this is a sign of rejection. Needless to say, I'm holding on to HOPE that he is right!!!

Mason's newest thing today is that his chest is itching him like crazy. His sternum incision is healing well but he has wanted to scratch it all day. Poor little guy. He has very sensitive skin. The nurse gave him some benadryl that only helped for a little while.

He also has quite a cough right now, which we all seem to think is from throat irritation and swelling from the breathing tube. His lungs do sound good.

Still trying to work on keeping all his meds and g-tube feeds down.We are playing around with how we spread them out and time them, to see how he best keeps everything down. I've offered him food by mouth, but he still prefers only water. The nurses and doctors say just to give it some more time and his appetite should come back.

I will say, spending all day in the hospital is not Mason's favorite place (or mine), but as I think about the tender mercies and the miracles that have brought us here it makes it all worth it.

Another very special friend gave me a plaque with this quote on it before Mason and I came to California. I brought it with me and have it on display in my "home -away-from-home". I read it everyday!!

".....Heaven's kindness will never depart from you, regardless of what happens......Bad days come to an end, faith always triumphs,
and heavenly promises are always kept."

--Jeffrey R. Holland--

Until tomorrow.......GOOD NIGHT!


bruno.emma.jose said...

wonderful pink cheeks !

The mom of 4 monkeys! said...

He looks great! And those numbers... Amazing!

Kaidence's Mommy said...

Love those steriod cheeks!!!!! Hope your day goes well. FYI, I know that every kiddo is different but Kaidence also had these same issues after transplant. Weird fevers, High (really high) CRP, cough, random vomitting and nothing ever grew back on cultures. In fact, this happened often for a little while off and on. Even after we came home. I think it is so hard to get the body use to everything. I hope that is all it is and it just needs some time to work itself out. I was just hoping that would help you relax a little. I hate waiting for those dang cultures! Have a great day today and we'll talk later. Hugs from Miss K to Mason!!!!

♥ Michele ♥ said...

He looks SO good! I can't believe how well he is doing so soon after transplant....truly a MIRACLE!! Hang in there Summer, we are still thinking of you!

Hollie said...

Love, love, love the pink cheeks!!! He is looking SO good! You're still in my prayers, I hope you get lots of snuggle time with your sweetie today!

Emily@Little Forever Family said...

I love these quotes! Everyday there really are miracles. Sometimes, and sadly, they are miracles that our hearts are not set on. Those miracles may not always seem like miracles, but truly, they are. Mason's miracle is truly wonderful. It is the type of miracle that brings hope to many. I love those numbers. That picture is one of the prettiest I have seen!!! Keep on fighting Miracle Mason!!!

Jennifer said...

Love the quotes...and your Miracle boy!

Kimmie said...

can you believe those PINK lips and fingers?? he just looks fabulous!!!

sheila said...

My prayers are still with you and Mason. Thank-you for the updates. There are still struggles but, so grateful for the miraculous milestones!

Love, Sheila

Shanna said...

I once am again in tears, these are tears of happiness for you and your little precious Mason. He is a sweetheart. you both are in my prayers through his recovery. he is doing remarkable. thanks for your testimony and for sharing that wonderful quote too.

Mindi said...

All our best juju is being sent your way. We think of and pray for you daily.

Mindi and little McKay

The McOmie Five said...

Thank you for sharing your story with us. I will have to do that some day with my little Carter and I take great comfort from your faith and strength. I pray for you and your little miracle boy!

brooks wynn said...

Awesome! Mason looks so good! I DO believe in miracles! You and your family have been a wonderful example of faith to me! I love checking out Mason's journey each day! Everyday, he looks better and better! We will continue our prayers for him and your sweet family! Love, The Wynn's