(Here's my sweet little chubby cheeked Miracle Boy
getting some much needed rest.)
A dear friend e-mailed me this quote on Easter Sunday as she followed Mason's transplant on the blog and I absolutely love it:
The green is heart rate.....perfect
The blue is O2 sats.....this is the miracle. Most of us sat 92% and above. Mason has always been between 70-80% since he was born. He must feel great now!!!
The white is respiratory rate......perfect range.
Mason's white blood cell count and CRP level are elevated a little more from yesterday's. We still aren't sure why, but the doc's are continuing the antibiotics. Results from the blood cultures will be back tomorrow so then we will know if this is a bacterial infection or not. At least no more fevers though. The biopsy will be held off until both of these blood levels come down. Dr. Berstein still doesn't believe this is a sign of rejection. Needless to say, I'm holding on to HOPE that he is right!!!
Mason's newest thing today is that his chest is itching him like crazy. His sternum incision is healing well but he has wanted to scratch it all day. Poor little guy. He has very sensitive skin. The nurse gave him some benadryl that only helped for a little while.
He also has quite a cough right now, which we all seem to think is from throat irritation and swelling from the breathing tube. His lungs do sound good.
Still trying to work on keeping all his meds and g-tube feeds down.We are playing around with how we spread them out and time them, to see how he best keeps everything down. I've offered him food by mouth, but he still prefers only water. The nurses and doctors say just to give it some more time and his appetite should come back.
I will say, spending all day in the hospital is not Mason's favorite place (or mine), but as I think about the tender mercies and the miracles that have brought us here it makes it all worth it.