After all the 'excitement' the last 8 days..........we are finally enjoying some quiet time. No true changes, which is good right now, because Mason's plan of course is a 'ONE-WAY' road to recovery from here on out!!!!
We are on day 2 of Round II's plasmapheresis and ATG or IVIg. Following the pheresis Mason gets IVIg on days 1,3, & 5 and ATG on days 2 & 4. Thankfully, last night he did not get the itchies from the IVIg. The doctor ordered for him to get benadryl and hydrocortisone not only before it this time, but every 4 hours to prevent the miserable itchies. Hopefully tonight's treatment will go just as well.
Mason also is on very high daily doses of steroids and anti-rejection meds. Basically, his immune system his being completely wiped out right now. More so than if he hadn't gone into rejection. (I think I'll be looking into purchasing a year supply of hand sanitizer and lysol wipes!!!!)
His blood pressure, heart rate, and O2 remain very stable, showing us that his body continues to tolerate all these aggressive treatments as well as the rejection hew goings through. His echo's continue to show perfect heart function! For this I couldn't feel more blessed!! What an answer to prayers of so many.
Mason is also back to his cute little self. The puffy Marshmallow Boy with the miserable fluid retention has left and given us back our Miracle Mason! He feels much much better!
There is still some fluid around his left lung but the right lung looks great. Tomorrow he will get the right chest tube (placed while in the cath lab last week) out for sure. Mason is on high flow nasal cannula since extubation on Wednesday. He is only on 40% O2 but they want to leave the high flow on for a couple more days to help give extra support to the left lung in getting the fluid off.
We HOPE for many more peaceful quiet days as Mason recovers.