Mason continues to be on the mend taking his baby steps, one day at a time. Last night his little body did a great job at getting more fluid off. He's still quite chubby with fluid, but a little better than yesterday, and much much better than Saturday and Sunday.
His heart function is thankfully still excellent. His angel Easter heart is one very strong little heart to put up so well with this rejection and fluid overload.
He had every itchy night during his treatment of IVIg. Even after benadryl and hydrocortisone. I was very sad for him to be so miserable and itchy! Mason has extremely sensitive skin. But, hopefully when we get the results to the antibody level test (probably tomorrow a.m.) it will have been completely worth it that he's had to do all these treatments. Mason is so tough and brave!!
Today's HOPE is to get him extubated/ off the breathing tube! He will do a few trial runs before the docs make their final decision. Personally, I think he's ready and I know he will be a much happier little boy! My HOPE along with this today is that Mason will now be on a ONE-WAY road to recovery. No more speed bumps please!!!
I'm very humbled by so many of you all over the world that are praying for Miracle Mason and his recovery. It is all of you that help increase my FAITH and STRENGTH to carry on each day. I'm also especially grateful to all of those at home helping care for my family (whom I miss very very much) making it possible for me to be here holding Mason's hand through this incredibly special journey.
Here is a picture of a some dear friends of ours that were
praying for Mason while on vacation in Newport Beach over
Easter and Spring break. These sweet kiddos actually did this
on Easter morning while Mason was in surgery!!
Thank you Aagard Family!!
14 comments:
Awww I love that picture! So cute! Me and my family are praying so hard for Mason, I never go a day without thinking about him and praying. Both of your strength is SOOOOOO incredible and encourages me EVERY single day! Thank you so much. Mason has been in my thoughts and prayers and I have been telling others too. God is so with you and him and it shows so much. Thank you again.
Angie's Support Team
Hey Summer- I am so glad to hear that Mason is improving. Keep going littl guy. Hang in there and know that we pray for all of you to be able to face whatever challenges you need to get Mason strong and home again. Lots of love from our little family to yours. :)
We're praying that the antibody test comes back with amazing results!!
Praying for all the itching to go away and for the breathing tube to come out. One step at a time
Praying for good test results tomorrow. Baby Steps are good!
We are still praying too :) You and Mason are amazing!
Caption on the picture: it was Easter morning when the kids did this, so it was right during his surgery. He is the constant subject of our family and individual prayers!
Now praying for no speed bumps. Sending strength an non itchy skin your way!
Praying for Mason's strong little body to embrace this strong little angel heart and that they will become one in purpose for a strong new life.
We are praying for Mason!!! We will be praying that the tests come back with the results wanted. I will be holding my breath for the good news. I hope he was able to be extubated, poor little man. He is a fighter.
We are praying so hard for you and Mason! We pray that you get good news tomorrow. Summer, you truly inspire me. I'm praying that you can get some much needed rest tonight, knowing how many people are praying for Mason and knowing that it is in the Lord's hands. We believe in miracles!
Julia
Connor and I are praying for you tonite .......send our love and good karma your way
I am a heart mom also, I have been following your blog for quite sometime and you give me strength! Just wanted you to know that little Mason is always in our prayers! Here is to no more bumps in the road!!!
Praying for good test results and no more itchies! Poor guy!
It does help during these difficult times knowing that there are so many out there thinking of you and praying for your family. It does give you the strength to get through those overwhelming days and to find hope that tomorrow is going to be a better day!
http://www.whenlifehandsyouabrokenheart.blogspot.com
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