Mason continues to be on the mend taking his baby steps, one day at a time. Last night his little body did a great job at getting more fluid off. He's still quite chubby with fluid, but a little better than yesterday, and much much better than Saturday and Sunday.
His heart function is thankfully still excellent. His angel Easter heart is one very strong little heart to put up so well with this rejection and fluid overload.
He had every itchy night during his treatment of IVIg. Even after benadryl and hydrocortisone. I was very sad for him to be so miserable and itchy! Mason has extremely sensitive skin. But, hopefully when we get the results to the antibody level test (probably tomorrow a.m.) it will have been completely worth it that he's had to do all these treatments. Mason is so tough and brave!!
Today's HOPE is to get him extubated/ off the breathing tube! He will do a few trial runs before the docs make their final decision. Personally, I think he's ready and I know he will be a much happier little boy! My HOPE along with this today is that Mason will now be on a ONE-WAY road to recovery. No more speed bumps please!!!
I'm very humbled by so many of you all over the world that are praying for Miracle Mason and his recovery. It is all of you that help increase my FAITH and STRENGTH to carry on each day. I'm also especially grateful to all of those at home helping care for my family (whom I miss very very much) making it possible for me to be here holding Mason's hand through this incredibly special journey.
Here is a picture of a some dear friends of ours that were
praying for Mason while on vacation in Newport Beach over
Easter and Spring break. These sweet kiddos actually did this
on Easter morning while Mason was in surgery!!
Thank you Aagard Family!!