Today has been another great day for Mason! The doctors are all very impressed with his progression! I feel so blessed and overjoyed that he is doing this well. His echo this morning showed great function still in his new sparkly heart. It seems to be such a perfect match so far, but I pray constantly that he won't experience any rejection. At least he seems to be tolerating all his anti-rejection meds okay.
They also did another ultrasound on his legs and neck looking for clots because of his mini-stroke episode last week. He does still have the clot in his right groin from the heart cath, but no more were seen(thank goodness). Thus we will continue the lovenox shots for at least 3 months. (Poor Mason and poor Mom because I have to give him the shots 2x a day once we are discharged).
Mason will probably get out his chest tubes tomorrow and one of his central lines! Then he will just have 2 central lines left! Maybe I'll be able to hold him. I sure hope so! And I keep forgetting to mention that his new heart seems to be handling his 'one healthy lung' anatomy just fine. This we are all so pleased with, for this was one of our biggest worries!
One question many people are asking is "when do you get to come?". The post-transplant team requires a 3 month recovery program before they will turn us back over to the care of Primary Children's Medical Center. Mason will have 2-3 weeks in the hospital and then the rest of his care will be mainly as an out-patient. We will stay here in Palo Alto and come to the Hospital at least 2x a week for blood draws , IV infusion treatments, and clinic visits. Then, if he has no signs of rejection during these next 3 months we will go HOME to Utah.
Wow you look good Mason!!
Below is a picture of our family Easter dinner celebrating a new beginning, a new life for our Miracle Mason. Nothing like Little Ceasers' pizza, salad, and pop(from the vending machines) for Easter dinner, and in the hospital cafeteria!!
Our Easter Miracle Celebration
Help us PAY IT FORWARD..................
This month is organ donation awareness month. Please, please, please sign up to be a donor if you haven't already.
Look at the miracle it has brought our family. Mason truly has new life because of the charitable, generous family who donated their child's heart. What if they hadn't?!!! Help us pay forward our gratitude by being a donor!
GOOD NIGHT! I'll update again tomorrow.