I think I jinxed myself with my post titled Giant Steps on April 11, one week post transplant! We are definitely in a baby steps mode now.
Mason was so fluid overloaded I knew it wouldn't come off over night, but I had hoped for it to come off quicker than it is. At least everyday his edema is a little better. His kidneys are doing their job now,( well with the help of several diuretics), but he is also taking in so many fluids because of all his meds and anti-rejection treatments it is a bit of a vicious cycle! Still praying for pee and chest tube drainage.
Heart function is still excellent. Lung function is good, with still small amounts of fluid around the left.
Breathing tube still in to allow him more resting time......time to get rid of his 'marshmallow' figure and back to his cute little Mason figure!! The goal is to extubate tomorrow (remove it), yay!! He will be a much happier little guy.
By Thursday morning we will have the antibody blood test results back, or DSA, to see how effective these treatments have been to kill the bad antibodies. Although, we won't have a true measure of his rejection status until after his next biopsy. This will probably be on Friday or Monday and then we can get results late that night. After that we will then know our next plan of action.
Here are a few pictures of our last couple of days:
Anytime someone new walks in the room, or he thinks I've left the room, Mason raises his arm. This is while being pretty sleep on sedation. The nurses and I have joked that he's saying "excuse me, can I go now?" I'm all done with this stuff!" or "Mom, wait! I'm coming too!"
Some of Mason's meds and treatments tend to make him quite itchy. He's constantly trying to scratch his face.
So, I have been placing a ice cold wet towel over his eyes and cheeks and it seems to help.
This is the plasmapheresis machine used for one of Mason's treatments. The yellow liquid is the new plasma he is receiving that is free off the bad antibodies.
Got to go now. I need to get Mason a new cool wet towel for his itchies. I will always update with any new updates or changes. For now, we'll keep on with our baby steps......and in the right direction!!
Thank you for all your love and faithful prayers for our sweet baby.