Thursday, April 1, 2010

Doing Well

I am sorry for the late update. Mason would not let me out of his sight or even let me leave his bedside for 2 minute without becoming extremely upset! I finally got him to sleep just a few minutes ago.


Mason was done with his cath around 2:15. By 2:30 I was with him in the CVICU. He was very glad to see me when I walked in, but of course very upset to be in a hospital crib! He was doing very well though for just coming out of a 4 hour heart cath.


I spoke with the CATH Dr. at the bedside. She explained that: 1) she did coil (close off) two large collaterals which should help the efficiency if his O2 saturation. (And it seems that it has.... on 1 liter of O2 he has gone up to 90% a few times. He normally needs anywhere from 1/2 liter to 1 liter to saturate at 78 %). 2) she decided not balloon or stint his upper left pulmonary vein. But the good news is that she did see that the upper vein is still open. It is quite small but still open all the way to the left lung. The lower one was non existent as suspected. She did not want to make things worse by irritating the upper vein with the balloon. She hopes that with a new heart and normal blood- O2 flow that vein may work. With the Glenn, that Mason has had, the blood flow has been redirected (it does not flow like a normal healthy heart) and then with a completely obstructed lower pulmonary vein as well...... his body has just dealt with it somehow with out really using the upper left vein. BUT it still appears to be open. Smaller than normal, but open!



I know it's confusing, but at the end if it all after today's cath the most important thing I got from it all is......... HOPE! Hope that Mason may get blood through his left lung after transplant. Maybe, just maybe, He will have 2 functional lungs after transplant! Okay, so that may be a pretty high hope........but as I've learned through this heart journey with Miracle Mason, "hope and pray for the best but prepare for the worst", or as I'd rather say- prepare for the unexpected.



I'm off to return to Mason's bedside and hold his hand!



More GREAT NEWS.........Mark and the kiddos are coming to visit for Easter! Mason and I will get to see them tomorrow night (Friday) or Saturday morning. (Depending if they drive straight through or not.) We are very excited :-)




10 comments:

sheila said...

I am so happy for all of your reasons to HOPE. So great that you and your family will all be together this weekend.

Cassie and Chad said...

Great news! Thank you for updating your journey, I love keeping up to date with what is going on with your little guy. How exciting to have Mark and the kiddos there! Enjoy your week. Love you!

The mom of 4 monkeys! said...

Great news!

♥ Michele ♥ said...

So glad to hear things went well!! Have a wonderful Easter together as a family!

Jennifer said...

I am so glad you got some encouraging news...and that you get to be with your family for Easter! How exciting!

Mindi D said...

I'm so happy you get to see your other kiddos! What a strong family you must have, you guys are all such an inspiration to me and as i sit here frustrated with my kids and hating school break, it makes me really think... so thank you! I'm so happy the cath went good!

cici said...

This is such great news. Even little pebbles of hope are wonderful!
Faith, Hope and Love will get Mason through anything. He really is a little Miracle boy.
Happy Easter to a lovely family

Deana said...

So glad the cath went well! I read your blog often and remember how inspiring people like you are to me. Mason is in my prayers every single night! Good luck to you and your darling family!!

Happy Easter:)

Libbis Grammy

Emily@Little Forever Family said...

I am so excited for your little family to be together for Easter! You guys are always in our prayers and just know we are hoping for Miracle Mason to get his heart (and quick!)

Kyle and Alli said...

I am so glad you will all be together for Easter!!! What wonderful news all around. I hope Mason has perked up after his cath and that his O2 will keep up without those pesky collateral veins!