Mason's kidneys finally kicked into action yesterday and he's been peeing off his extra fluid, slowly but surely. Yay! (Your prayers and mine were heard and answered.)
He is still a sweet little puffy marshmallow, which I know makes him uncomfortable! The docs have to keep him pretty sedated to keep him happy. Which I don't really like, but I don't want him in pain or uncomfortable either. He needs his rest to heal.
He is still on the breathing tube (since Friday night) to help him get the rest he needs to get this extra fluid off his lungs and body. He is doing most of the breathing and work on his own which is great, but the the b tube is there to support him if needed.
This afternoon he will start his 4th pheresis treatment, followed by an IVIg treatment. The ATG was only for the first 3 days. PRAY with us that these are working please!!!!
Today's echo looks great, so Mason's heart function is excellent and not affected by the rejection. For this I am very very grateful!!
Today, we press forward with faith that Mason can fight off this awful rejection!!
A very dear heart friend shared this with me:
....that the works of God should be manifest in him. John 9:3
16 comments:
Oh Summer, my heart sank when I read your post on Saturday about the rejection counts. I am so glad that Mason is doing better today! Yeah! Our prayers are being answered! You are such of pillar of faith to me, thank you for your faith and example! You lift me everyday! Our hearts and prayers are continual for sweet Mason and your family! Love, The Wynn's
Faith is the key to know that miracles can happen, that Miracle Mason will make it through the rejection. I KNOW you have the faith. So I will continue to PRAY for your sweet family! My heart hurts for you during this rollercoaster journey, but I have hope that Mason can defeat the rejection and give YOU the best Mother's day ever! He is sure cute.. marshmallow or not. Kiss his puffy cheek for me. You are all loved by so many.
Love Jess
We continue to PRAY!!! I'm so sorry that Mason is going through so much. I'm glad that he's peeing some of the "puffy" off and that his heart function remains excellent!! Thank you for the update... I pray that it will be just a matter of days that he will be done with the breathing tube and back in your arms where he belongs.
You are both in my heart and prayers. Thank-you so much for the updates. I admire your faith and persistance.
Hey Summer. This is Melinda. We have been thinking about you and praying for you and your family constantly. You truly amaze me with your strength, love and courage. Keep up the fight Mason! You are one tough guy! Lots of love, faith and prayers your way!
I am so happy that he is fighting off the rejection! We pray for him in all of our prayers. Mason has come along way and that shows that miracles really come true. We love you guys and can't wait till you guys can come back home. :)
Many prayers coming your way from our family.
I am thinking and praying about Mason constantly.
Hello, I found your blog from another blog. My son has HLHS too, he's five and has had four open-heart surgeries. He's completed the Fontan, and is doing good heart-wise. He's finally walking now, and just started to eat on his own as well. Just a little history there. :)
I wanted to say that I'm praying for Mason and your family. May God's peace be with you during these latest bumps in the road. Praying for absolute healing and for no refection!!
Millie and Colin-HLHS
www.cutiecolin.blogspot.com
Praying for your sweet baby boy!
So much power in prayer...to hear his kidneys are working, wow! The prayer vigil continues for all of you.
Owen's Gramma VIcki
Summer... We are still here. Hoping and praying for Miracle Mason. Thank you for keeping the blog updated. You continue to inspire me to be a better mom. Thank you for your example. Hugs to Mason from Madison..
We contiue to stand by with fasting and prayers. Prayers for the success of each step on the way but most of all that compatibility can return and rejection will stop. May you and Mason and your whole family be comforted.
glad he is doing better....
Hope my prayers in french will help.
Summer, my heart and prayers are with you. You have experienced so many miracles, and I am sure more are in store. The Lord is waiting anxiously to pour them out upon you and Mason! Thanks for all the updates; it helps to have very specific things to pray about. My whole family loves you, and we are all praying hard for Mason's recovery. --Kathy Jenkins (Frandsen)
you don't know me from Adam but i have found your willingness to blog about your scary adventure so empowering-i swear you can do anything with your strength, faith and patience. the problem is along with your generosity in letting us in your journey is the fear when your blogs are later than usual-i'm not asking you to blog more i just hope all is well
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