Wow! Mason has had one very busy month! What a wonderful celebration this month has been with both tears of joy and tears of sadness. Mason is now a 29 month old with s new Angel heart and has overcome a very big rejection obstacle (although we know we will never be "out of the woods" for rejection episodes, but at least Mason and his new heart have proven they can fight through these obstacles!)
Here are a few pictures from April:
Spending the night in the CVICU the night after
his heart cath on April 1st.
Back in the hospital April 2 because of his mini-stroke.
Easter Morning, April 4th, pre-transplant bath
Out of the OR after his 6 hour heart transplant surgery.
Oh no! Mason's big rejection set back on April 16th.
It felt like starting all over again! Breathing tube,
chest tubes, central lines. We were so sad.
After 10 days of aggressively fighting the rejection we
celebrated good news w/ a walk and then some ice chips!
After a he had fun soaking the nurse and I during
his sponge bath he fell asleep for a short little nap.
One exhausted little boy! All he really has been
doing is taking a few little cat naps through out
the day and night, but not any good long sleep periods!
Yay! Mason has visitors for his 29 month b-day!
Dad and Braiden were all suited up because the doctor
was doing a sterile procedure, re-wiring Mason's ART line.
Mom and Braiden calming sweet little Mason.
I really started this post late last night (April 30th), but I never finished it.....sorry. Mason and I have been busy hanging out with Mark and Braiden the last couple of days. It was so good to have them here. We miss them and the rest of the crew very much. Braiden was able to make Mason smile and laugh many times while they were here. It was absolutely darling! Mason has not been his happy self, so I was extremely glad Braiden and Daddy could help cheer him up. It made me very sad saying goodbye tonight to them, sweet Braiden was very very tearful. It breaks my heart!
The nurses and I think Mason has a definite case of ICU/hospital delirium. He is just very irritated with still being in the hospital! But do you blame him?? He wines and cries a large majority of the time, so hopefully this next week will go smoothly and we can be discharged very soon.
The bummer of the weekend is that we are still in the CVICU! Not because Mason is not doing well, but because there has been a problem finding him an isolated room on the third floor in 3 West (because of being a transplant patient isolation is protocol due to being immune suppressed) ......we are still in the ICU. But at least they switched out the crib for a twin bed so I can lay with him now.
Have a happy weekend and I will update again soon!