It really did happen! Miracle Mason was DISCHARGED from the hospital this afternoon! It seems so surreal myself. Mason left the hospital with his healthy new ANGEL HEART! Wow!!!
We knew a few days ago that today would probably be THE BIG DAY, if his antibody levels came back low. But, I didn't dare announce that possibility! I was not going to set myself up for a 'jinx' and then a big let down! I know better.
After the antibody results, the main hold up was making sure I had all 18 of the correct medications (correct concentrations, correct dosages) to go home with. Because our insurance is out of network we could not fill them at the hospital, but somewhere across town. Then I had to ask the pharmacy manager if he would do me the favor of delivering them to the hospital (not something this Walgreens normally does), because before Mason could be discharged one of the Transplant Team's NP's had to check them all to make sure they were correct. What an ordeal!
So we loaded up two of the hospital's wagons with all our gear.....a very high tech blood pressure machine (I need to check Mason's BP twice a day because some of the anti-rejection meds can cause high blood pressure), a cooler full of meds, a case of Mason's G-tube formula, diapers and wipes that the sweet nurses usually toss in, CPR kit, my suitcase, and all the other STUFF we've acquired over the last 6 weeks........hugged the nurses goodbye......put Mason with his little mask on in his stroller..........and down to car we went.
When Mason saw the Brand's car (Sheila was kind enough to pick us up with all our stuff, Thank you) out in front of the hospital he took his mask off and was smiling sooooo big. We had been telling him we were going "bye, bye" but he didn't truly understand tell we got outside and to the car. It was precious to see his excitement.
At that moment I was too excited myself to tear up, but now as I retell it I have tears streaming down my face. Mason is a TRUE MIRACLE and has been watched over from Above, protected through all our ups and downs, and through every chapter of this journey. I am so very grateful to my Father Above, because of Him this BIG DAY was possible. And because of Mason many of us have prayed more fervently than ever before. Thank you Mason for teaching us so many important lessons.
Upon arriving to our "home away from home" as we pulled into the driveway Mason lifted his hands above his head and with a huge smile said for the first time ever "HOME". He had realized now that we had truly left the hospital! So special!! (only to return to the hospital next week 3x for different appointments, but I won't tell him that right now!!)
I will post pictures of the BIG DAY sometime this weekend.
LOVES TO ALL! GOOD NIGHT!