Mason turned 28 months yesterday.
Always a great accomplishment!
Always another prayer answered!
Always another month worth celebrating!
We love you Miracle Mason!
Mason LOVES our daily walks!
Helping do the dishes. Although he doesn't fit in this
sink like he does the one at home, he manages to
soak himself from head to toe. Mason LOVES water!
We spend a lot of time playing ball too!
Mason must be taking after Daddy and his brothers.
He has a great throw!
Here's Mom and Mason enjoying a beautiful
Sunday afternoon in our "adopted" family's back yard.
Hope you are enjoying your Spring too!
We certainly are!
The flowers are absolutely gorgeous!
I even have a vase of huge sunflowers in our
little apartment right now thanks to
a friend from college I met up with here!
Thank you Aly!
I am trying to enjoy every minute this Spring
with our Miracle Mason!
Trying to LIVE in the MOMENT!
For we never know what tomorrow brings!
Always hoping for the best,
yet preparing for the unexpected!
Praying, that as we continue to enjoy
SPRING TIME & SUNSHINE,
even on raining days when we so miss our family,
we will continue to feel peace and comfort!
Praying that day will come soon when
I get that special call which says,
"We have a heart for Mason!"
Thank you for your continued support and prayers and please say some extra ones tomorrow! Today Mason had an echo and consultation to prepare for his HEART CATH tomorrow. I don't know the results of the echo. I didn't meet with our heart failure team, rather the anesthesiologist and heart cath nurse practitioners. Of course they had to warn me of all the risks and remind me that Mason does not have much of a reserve....(THANKS- I Already knew that! Did you have to remind me!??!).....so he'll probably stay the night in the PICU after, to be closely watched.
Why the HEART CATH? To get a real accurate measure of his heart function/ failure. Is his heart sicker than we think? Or is his treatment okay where it's at while we wait for his new heart?
I'll post with news after the CATH when I can tomorrow.
And last but definitely not least.......... the STATS of where we are at on the HEART TRANSPLANT WAITING LIST:
Here is the most current- and the statistics for kiddos Mason's age are increasing.
(all information according to www.unos.org)
As of March 30, 2010 there are 3,151 people (adults and children) in the United States waiting for a heart.
(OPTN data from March 26, 2010)
Nationwide:
There are 89 kids waiting for a heart in the age category 1 to 5 years in the whole United States.
There are 21 one to five year olds waiting for a heart in Mason's blood type of A+ in the US.
5 listed as a Level 1A
2 listed as a Level 1B (Mason's status)
2 listed as a Level 2
12 inactive on the list
Our Region, Region 5: Arizona, California, Nevada, New Mexico and Utah
There are 16 kids ages 1 to 5 waiting for a heart in the Region 5.
There are 4 one to five year old kids matching Mason's blood type of A+ in Region 5.
0 listed as a Level 1A
1 listed as a Level 1B (Mason) YAHOO!!!
2 inactive on the list
**So according to this data MASON is at the top of the list for his age and blood type!!!!
BYE UNTIL TOMORROW!
10 comments:
Best of luck on the heart cath tomorrow! I will be thinking of you!
We will be thinking of you tomorrow. Please let us know how it goes. We will be sending prayers your way.
Give Mason loves from Kaidence!!!
I hope everything goes well with his cath tomorrow. I will be anxious to hear how it went. I think that is really encouraging about the info you found out for the transplant list. Hopefully nobody gets listed as 1A so that Mason will stay at the top of the list! Love and prayers go with you always. <3
Hugging your little sweetheart in Prayer for good news and a long awaited phone call.
Mason looks so darling! I love all of the pictures you have posted. Thank you!! Thanks for the stats too. It is nice to know what is going on.
Love,
Tiff
Thanks for keeping us updated! We check on you guys often. Yeah for Mason's status on the list. I bet every time the phone rings your heart jumps. We will keep you in our prayers.
Becca-Ellie's mom
That is so great that he is on top of the list! Woohoo!! Good luck tomorrow, keep us posted! I too hope that call comes soon!! Hang in there :)
Mindi
Libbi's mama
you don't know me but i came across your blog through paul cardell's website and have been following your story for the past few months...my name is ashlie and our little cooper just had his 2nd open heart surgery this month at just 19 months old. luckily, he is doing great for now.
i just felt like i needed to comment on your blog because even though i don't know you i somewhat know what you are going through and my heart aches for you and your family. i am so sorry that you have to go through all of this and be seperated from your family but i have to say that just from reading your blog i think you are an amazing person and mother and i know that the lord is watching over you and mason and your sweet family...my thoughts and prayers are with you and i wish you the best of luck...hang in there!
ashlie bundy
thehopefulhearts.blogspot.com
hi, its ashlie again...i have something that i wanted to send you...is there any way you could send me your address? you can email it to me at bundys4@hotmail.com
thanks!
ashlie bundy
www.thehopefulhearts.blogspot.com
Mason looks so happy!
That is GREAT news about him being #1 on the list for a heart in your region!
Hope all went well with the heart cath!
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