Tuesday, August 24, 2010

For the Love of "The Hotel on the Hill".....



I apologize to those of you who have been checking back for a new update. Most likely with me no news is good news. Or at least no new bad news!


And that is the case now.....
we are still here at 'The Hotel on the Hill' with nothing new or nothing worsening. Mason's belly bubbles, known as pneumatosis, or slowly getting better. Those little bubbles are just taking their own sweet time to go away! The docs had told me it can be 14+ days to clear up completely, with the best case scenario being 7 days. I've just been hoping for the best! Do you blame me though???! We've spent enough time away from home this year! I am so grateful for his new happy healthy heart, but I'll admit.....this immuno-suppresion is tough. It WILL get better and easier!


Mason is on day 9 of being NPO (no food or drink by mouth or g-tube), but he is drinking a little water and chewing his favorite ice. He is still on TPN (IV nutrition)and IV antibiotics. The GI docs want to keep him NPO and on his IV's until all the pneumatosis is gone on his x-ray. Yesterday's x-ray was much much better, but not completely clear of the bubbles. Today Mason had a break from the x-rays and will get another one tomorrow. I'm hoping and praying for a totally clear x-ray tomorrow. Even though we do love the staff here at The Hotel, we do want to go home!!!


Mason also had his monthly IVIg infusion yesterday to get that done with while he's already an inpatient. It was scheduled for this Thursday.


All the above being said, you can see I'm not getting us out of here in time for my kiddos 1st day of school tomorrow. But w/ the help of Grandma I'm going to sneak away in a little while this afternoon so I can go to "Back to School Night" with my other kids and w/ the help of Daddy I may sneak away early in the morning to help send them off for their first day of school.


Thank you for your continued love, concern, and prayers.


7 comments:

Joshua said...

I will pray that you can find peace in not being able to be everywhere at once. You are an amazing mother. I will also pray that Mason is well enough to go home very soon!

Beth

cici said...

Big healing hug for Little Mason

goldie said...

I am so happy that you are back in Utah, but will be praying for you to leave the "Hotel on the Hill" soon!! I have been thinking about you, Mason, and all of you other little kids this summer since I haven't had the chance to see them twice a week like I did last school year. I hope everyone is doing alright.

I also thought I would just leave you a little message on here to tell you that I am still tutoring this fall. So, if you want me to come help any or all of your kids I would love to. I will be tutoring Monday, Wednesday, and Friday. I can do 4:00 any of those days. So, if those days work for you and if you want any tutoring at all, call me. I have a new cell phone number. It is 801-837-9271.

Good luck little Mason. Get better buddy!! Tell your other little kiddos hello from me!

goldie said...
This comment has been removed by the author.
Mart -n- Marci said...

Your optimism amazes me. Hang tough little guy. (and mom)


...and thanks for the update!

Mindi D said...

You have good support that is great! I'm happy you'll get to be with your kids on their first day!! Hang in there you'll be home soon!

The Davis Family said...

It is good to hear his xray's are improving! Praying hard for little Mason.