It has been one of "those" weeks at our house!! Where do I start?
- our microwave broke beyond repair
- our dryer broke w/ a repair at $250+
- our vacuum broke w/ a repair at $200+
- I backed into neighbor girl's car (Yes I did! But it was dark and there was LOTS of snow.) w/ a repair at $????
- I can't get an answer from Stanford about whether Mason will be presented today at the Selective Meeting (w/ the Board of Transplant Dr.'s and Surgeons).
- Nor have I received any info about Dr. R's research of Mason's vein disease and need of a heart transplant to one lung.
- Mason's G-tube button continues to hurt him so I took him up to Primary's for an upper GI x-ray with contrast.......results: poor little guy has moderate to severe reflux!! What? Really? He didn't have any reflux before he had his G-tube put in! How long has he been in pain with this? I feel horrible!!!
- I can't hold back my tears as I leave Primary's (yesterday after the x-ray), because every time I'm there the words "I'm so sorry, but there is nothing more we can do for Mason" ring in my head from 'that' day of his heart cath in Sept.
14 comments:
Oh how frustrating! I hope that everything can get repaired and you hear some news fast. Good luck this week trying to just "dance in the rain"!
I spend so much of my day playing with Ellie, and kind of neglect a lot of other things. I feel bad that I didn't do that with my other girls. I have learned through this to hug my girls a little longer and spend more time with them. We had a week like that in September and the final thing I just laughed which was a suprise to my husband, but that was the only emotion I had left. Good luck with Stanford and keep us posted. I pray that next week will be a better week.
So sorry everything is happening at once. The Gtube brought Owen's reflux back with a vengence.. he pukes at least 4-5 times a day. Prevacid and Zantac help with the burn. I always feel horrible anyway. :( So sorry Mason is refluxing too.
I'm also sorry that Stanford hasn't given you an answer yet. Praying for great news!!
I am so sorry about the week. You have a really positive attitude about it and that makes it easier. You and your family remain in my thoughts and prayers every day.
Summer,
Some day, your life will be more calm, but it's the living and WAITING through it that is the hardest part!! Sometimes it seems like the hard times go on and on and on and it's hard to see the light at the end of the tunnel. You are doing a great job!!! Give yourself credit, what you are going through is one of the hardest things a human can endure!!
Keep holding on, I think about you a lot.
Michele
Dancing in the rain...or snow is hard when all you want is to be inside where it is warm and dry!
....hoping you get some "warm and dry" news soon!
I love following Mason's blog. It's so fun to see your family. It looks like you had a terrific Christmas! Mason looks so healthy and is getting chunky--that's so good to see! I left a comment about your great family pictures too. Thanks for sharing your strength and faith with us through Mason's blog. We are always praying for your family. The Wynn's
That is my favorite saying of all time! Keep your head up, although it is hard i'm sure. :)
We love you Mason and pray alot for better times ahead.
Remember it's always darkest before the dawn, but Mason is a ray of sunshine and hope.
You are an inspiration Summer.
We were having trouble with a wayward teenage son who "had" to get married. The additional stressors just kept piling up on top of everything else, but in some strange way, the smaller problems seemed to dilute the bigger issue and actually helped us get through it. Did I welcome the extra problems? no way. They seemed so very unnecessary and unfair, but we're not the ones in charge here.
Is the son any better? Not really. He's going through his 2nd divorce. We do have two darling grand kids, however, and that helps make up for part of it. Have we learned to deal with stress? Better than when our son was a teenager.
Doesn't look like the rain will stop any time soon. Here's hoping the old feet will keep dancing in the klunky galoshes with orthopedic inserts.
That IS a crappy week. Just one or two would make for a crappy week. Next week HAS to be better. Your family is amazing and you are strong. I think crappy weeks like this make the good weeks look better. We are praying for good news and peace for your family!
Heart hugs,
Emily
I've had a hard week too. I pray for your little Mason and your family. I know what you mean when you say that you should count your blessings, but when you don't get that blessing... or if you are unsure of it, than counting your blessings is a whole lot harder!!! I have been wanted to appreciate and enjoy my other two kiddos to the best of my ability, but I can't do ANYTHING to the best of my ability right now. and that... breakes my heart. I just wish that, since MOST hearts are repairable-- that Stephen's could have been. The wierdest thing this day and age to hear... unfortunately there's nothing more we can do. I hope that Mason can stay as long as possible, with as much comfort as possible. Take video and pictures, journal and make lots of memories because tomorrow is promised to NO ONE. You are a great mother to that little guy. I have a new found love for mothers that are playing the waiting game. What a roller coaster it is. All my love, Jess. Let me know if you want to chat.
Sometimes it is good for everything to come all at once. Maybe you can flush your system, have a good hard cry and feel a little lighter afterward. I am sorry that you are having flashbacks, that never helps. Just keep on loving your sweet boy (I know you will) and that will help pull you through.
Staci (angel Bridger's mom)
Oh my goodness. I hope next week will be a walk in the park compared to last week. We will keep Mason in our prayers and pray for answers from Stanford. The waiting game is so very hard. You are so strong and it is ok to have some down days it makes the good days even better.
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