Tuesday, January 19, 2010

Sweet Support/ Paul Cardall's Gift to the Heart Community


Thank you to all of you for leaving comments on the blog, texting me, or e-mailing me with sweet messages of love and support since my last post. It truly means a lot and is helping me get through this time of very important (and emotional) decision making!!! Many of you even sent me your favorite scripture or quote! Thank you Thank you!

These two especially have made very strong impressions on me:

“Be still and know that I am God.”

"Faith makes things possible, not easy."



Also, I wanted to let everyone know about a very kind thing Paul Cardall and his wife are doing for our Utah heart community. I copied and pasted the following post from his blog, "Living for Eden":

Apply for CHD Scholarship & Nominate a Family

"As I waited for doctors to find me a new heart, my community and colleagues in the music industry organized a benefit concert for our family. I wish every family in a similar situation could experience what I felt that evening.

This is why I am doing The Celebrate Life concert at Abravanel Hall on February 15, 2010 in Salt Lake City and rewarding a scholarship to an individual affected by congenital heart disease (CHD) and a financial gift to an angel family affected by this disease.

According to Senator Dick Durbin and the American Heart Association, “A child is born every 15 minutes with congenital heart disease or CHD.” Despite this sobering statistic, the great news is that most individuals born with CHD now have the medical resources available to help them live longer and enjoy the benefits of growing up, getting an education, falling in love, getting married, and raising a family.

I am living proof of the possibilities and want others to experience my happiness.

Therefore, I am extending an opportunity for individuals affected by CHD (whether you are an immediate family member or have been diagnosed with the chronic illness) to apply for a 1-year tuition free scholarship through my local Salt Lake Community College for those affected by congenital heart disease. I understand the costs associated with having a chronic illness. Education often takes a back seat because of mounting medical bills. I don’t want anyone to be denied of an education because of his or her financial situation."

For more information and/ or to apply for this scholarship visit:
http://scholarship.paulcardall.com

Nominate an Angel Family in the Rocky Mountain Region to receive a financial gift:
http://scholarship.paulcardall.com


***We have a meeting this week at Primary's with Mason's heart surgeon , Dr. Kouretas, the head surgeon over Transplants, Dr. Kaza, and Mason's cardiologist Dr. Everett. We want to hear their opinion about Mason getting a heart transplant to one lung at Stanford. We also will be talking with Dr. Rosenthall from Stanford sometime this week, to help answer some of our questions such as; how soon he really thinks we should come, quality of life after Transplant (especially because of Mason's 1 healthy lung situation).....with what he has found from his research, Mason's status when listed ( the plan is 1b , which is 2nd priority)......but, we figure if Mason and I are going to jump into this with both feet and leave our family for a while, then let's just admit him to the hospital, list him as 1a, and get him his heart sooner!!! We'll see what he says?!! I will post later this week with some details about our meeting and phone call.



Mason also has a
cardio check up this week and an echo......which will hopefully give us an idea of how his heart failure is. Whether his function is the same, better, or worse......helping us decide on how soon we really need to get the Transplant ball rolling!!




Until next time! Have a great day !

10 comments:

Jennifer said...

Isn't Paul just about the most AMAZING person EVER!? I live in AZ and will be too close to my due date to go to the concert and it makes me sad to miss it...

...crossing my fingers for good news on the echo....

Moffitt Fam said...

I am so happy you will be able to start working on getting Mason a new heart!! I just know everything will work for the best, the way the Lord intends it to!!

Kimmie said...

i think about you and your family everday! my kids love to find out the latest on mason...sounds like all is moving in the right direction. i pray for your peace and comfort and for your strength to be the mommy you want to be to all of your chidlren!

She Made Mention said...

I am so excited to go to the concert. Are you going? Okay, so I'm trying out different blog programs... ahhh, anyways I accidentally deleted my posting, had to redo it... and it erased your commment. I couldn't find it in my emails anywhere. So forgive me. I was sad because I don't even remember what you said.

Anyways... still thinking of your sweet family. I love your sweet boy. He is just adorable and I have said many prayers... and will continue to do so.

Love Jess

Shanna said...

I hope you don't mind me commenting on your blog, but I was given your blog address by the Abbotts that I guess are in your ward.

I lost my little 8 month old baby boy in December 2006 to heart and vein disease. I was reading your comment below about why can't they have vein transplants now. I am totally with you on that. My little boy died because of obstruction of the veins. He had two open heart surgeries up at Primary Childrens and Dr. Kouretas did it too! (that man is Amazing)
His heart was fine after his surgery, it was just his veins.
Anyway... I am a photographer here in Utah County and my blog is dedicated to my little Logan. Logan is what got me into photography in the first place, what I am trying to say is I like to take pictures of heart babies/children in his memory. I do it free of charge just cause we as parents never know what the outcome may be. as hard as that may be to hear! I had my friend come to my home and take pictures of Logan 6 days before he died and then at his funeral. Those pictures are very precious to me. I would love to share my story with you if you would like to read it. my blog is shannamichellephotography.blogspot.com just go to the side bar click on 2008 and it should be the top post titled remembering Logan.

Mason is extremely beautiful! He has eyes like my Logan! blue and sweet. it's like he is wiser beyond his years.
Your family will be in my prayers through this trying trial you face! If I can be of any support please let me know!

God bless

Shanna said...

Summer,
I just read your comment on my blog and let me just tell you how much I cried reading it as well. It's funny how I don't know you, yet I feel like I do. You say that you feel Mason has so much more to teach you, I have to say that every year that has passed by Logan has taught me something new. Each year that approaches the anniversay of his death teaches me something new. I think back on what I went through and I do ask myself how did I do it! The only way I did it was prayers and faith! I am so grateful for the plan of salvation and the gosple. I know what you are going through is the hardest thing you will ever have to face. What ever the outcome may be for your sweet baby boy just remember the lord has a plan, he knows us and knows what we can and can't handle. I was told after Logan passed away that we promised heavenly father, our husband and our child that we would agree to take this trial in our life. I laugh about this all the time saying I probably was chatting with my sisters in the back and when heavenly father said is that alright with you shanna I said sure not really listening! LOL
I want you to know that I prayed for you last night. I will continue to do so.

Please if ever ever you need anything. Please don't hesitate to ask.

Shanna LeRoy

Traci Bulkley said...

Wow. I've been thinking about you guys a lot lately. Hope you get the answers you're looking for/need from your meetings with the docs. Our surgeon is Dr. Kaza and he is AMAZING. Though I think that could be said of all of them, they wouldn't be at PCMC if they weren't.

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