Wow it's already October and I 'm just now finishing up my Summertime fun post! Where does the time go? I wish there were more hours in a day! I just can't seem to ever get everything accomplished that I would like to. Some day I guess! But, then I'm sure I will miss the craziness of having 5 very busy kiddos at home.
Just a quick update on the little Mason man: He's loving school, but he did already miss a week in September with pneumonia. Thank goodness we caught it in time and it was a mild case. After two rounds of antibiotics I think it's all cleared up. (Except that the antibiotics and the diarrhea caused by them have really messed up his Prograf level. Thus requiring 2 blood draws a week lately! Yuck!) Besides two days of preschool each week he also continues to have in home therapists for speech, PT , and OT. He's one busy little guy!
Upcoming dates: Tomorrow, Thursday, October 10, Mason is getting his 3rd back rod expansion. Yes it's already been 6 months since his last one. The plan is to stay over night at Primary's for his recovery and also to receive his monthly IVIg infusion. Then, on Friday October 25 Mason has his next heart biopsy. This is to follow up on the rejection he's been in since March. I'm very grateful he has remained asymptomatic with this rejection but I do pray this long term rejection is not going to cause damage to his Angel heart.
Now for a replay of our family's summertime fun.....
On June 28 Mason, Ammon, and I were invited to attend the
grand opening of the new music therapy room, Sophie's Place,
at Primary Children's Medical Center. It was a very special event!
A few of our heart transplant buddies were also there that day.
(Ammon and Mason with our heart transplant buddy Matthew)
(Here they are with heart transplant buddy Kaidence.)
Mason absolutely loves hanging out with these special friends!
(He was also glad he wasn't not the only one having to wear
the big blue mask! Because Primary's is under going some
remodeling and construction the transplant kiddos have to
wear these big blue masks instead of the little white ones
while they are there. Mason does not like them! )
The music therapy room was named in memory of a girl
named Sophie who used to volunteer at Primary's. Above are
her siblings who entertained us at the grand opening.
Steve Young's Forever Young Foundation played a big
role in the opening of Sophie's place. Sophie's Place is
connected to the the Forever Young Zone play room,
(which was recently enlarged and remodeled also), that has
been at the hospital and enjoyed by patients and families
for many years. Since Steve and a few other celebrities
were there we of course had to snap a few pictures!
Steve and Barbara Young spoke as well as Chester Bennington
from Stone Temple Pilots and Linkin Park. (Chester and the
Stone Temple Pilots also performed at this celebration!) They
announced that the next Sophie's Place will be opened at
Lucille Packard Children's Hospital at Stanford. Our other
home away from home. Such exciting news!
Also there to take part in the grand opening and
celebration was dancer and choreographer
Derek Hough from Dancing with the Stars.
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And then off to Cali for a week at the beach.....
Fun family time
Relaxing in the sunshine
Or in the shade
Catching some waves in Dana Point and San Clemente
Visiting Balboa Island
Celebrating the Fourth of July
Playing a little smash ball
Enjoying the beach life
(And we were even lucky enough to have Sammi
our Super Nanny join us for half of the week.
Kaitlin was glad not to be the only girl for once!)
Watching some fireworks from
above the Dana Point Harbor
Playing in the sand
Golfing on the beach Mason style
Hanging out with some cool birds at the harbor
And of course one of my favorite parts of
our annual beach trip is catching up with good
friends from my childhood. Thank you to those
who we got to visit with this year!!!
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After a fun week at the beach we headed home
to watch Braiden and his baseball team.....
win the Tournament of the Champions!
Way to go CLUTCH!
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Then Kaitlin got to go to BYU Idaho for AFY (Adventures for Youth).
with four close friiends and she met many new friends.
They had a great time and made many memories!
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Ammon, Braiden and Preston visited cousins in
Cokeville, Wyoming and had great time!
They rode horses, fished, rode four wheelers and much much more!
They had so much fun they didn't want to come home!
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We also spent a lot of time out on the boat this summer.
Since Mason is still on steroids and public pools are
not allowed the boat was a great place to hang out.
Lake water isn't necessarily allowed either, but we have
a big 4 person tube that Mason could go on (sitting on
someone's lap) and we'd take him really slow so he hardly
got wet. But, he felt like he was still taking part in the fun!
We went boating at Utah Lake, Deer Creek Reservoir,
Jordanelle, and even Lake Powell. Usually our kids
brought cousins and friends along to join in on the fun.
Cousin Nicole came along with us to Lake Powell for some....
cliff jumping,
sun tanning,
wake surfing,
and wake boarding!
Kaitlin, Preston, and Braiden even tried
some double wake surfing at the Jordanelle.
Ammon enjoyed being the flag boy.
Mason liked to drive w/ Daddy,
pretend to take a nap,
or hang out on the tube.
(Preston and baby Cousin Ty)
(Mason, Braiden, and Cousin James)
(Cousin Peter, Braiden, and baseball buddy Easton)
Utah Lake tubing
(Cousin Samantha, Kaitlin, and Cousin Madeline)
We certainly had a fun and healthy summer vacation!
For that we are grateful!!!
Now let's hope for a great fall and winter as well!
***Please remember Mason in your prayers that all will go well with his back rod expansion surgery tomorrow. I will try to update tomorrow night. Thank you!!!
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