To those of you who have checked the blog for Monday's biopsy results I apologize for not posting sooner. My kiddos are on spring break this week so I haven't had much free time! The results were not what we were hoping for, but at least the rejection did not get any worse. Mason's rejection remained the same even after all those hefty doses of steroids. (For those who understand the biopsy scoring that Primary's uses, his score in March and this recent one on Monday was: C3 V3 ISHLT 1R pAMR 2.) Basically he's still having mild cellular and vascular (antibody mediated) rejection.
The good new is.....his echo still looks good, so his heart function has not been affected by the rejection. Plan of action? Mason will need to stay on the steroids for awhile longer, probably at least a month or so (BUMMER). He won't have to go back up on the high doses he started on last month but will stay on a moderate maintenance dose. The poor little guy is such a GRUMPY boy on steroids (not all day, but a lot of it!) I hope this rejection clears up soon! We are also going to be doubling Mason's monthly IVIg treatment that he's been getting since Jan 2012 for the Parvovirus because the higher dose will also be beneficial in treating Mason's antibody rejection. His amount of donor specific antibodies (DSA's) is pretty high right now. Guess this shows a transplant recipient is never out of the woods.
But, I am just so grateful we caught this rejection before it was severe and/or affecting his heart function!
Monday (April 8) Mason will go in for another back rod expansion and while we stay over night he will also get his next IVIg treatment. Please remember him in your thoughts prayers to conquer this rejection and that all will go smoothly in the operating room on Monday. Although it will be a minor trip to the OR it never gets easy to say goodbye before any surgery!
Our family had a great Easter! Here are a few Pictures.....
The younger boys were excited to wake up and see.....
what the Easter Bunny brought!
And, the older kids......not so much!
They would've rather slept in!!!
I attempted to take pictures of the kids before church,
but I think they'd all had a little too much Easter candy!
Easter turned out to be a beautiful warm
and sunny Spring day.
It was perfect for an Easter egg hunt with family,
just hanging out in the great weather,
or even a little squirt gun fight!
In fact I think Mason's favorite part of Easter....
was the chasing after everyone with his squirt guns!
For every holiday we spend together as a
family we are truly grateful!
Happy Spring!
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