Saturday, July 10, 2010

Twists and Turns


Mason has made it up and over another seed bump, another twist and turn in this chapter of our heart journey. Hooray for Mason!



We came home (well, to the RMH) from the hospital this afternoon. Thank goodness for a short 3 1/2 day visit. Mason's viral test and bacterial blood cultures came back negative. His white blood cell count is trending back down towards normal (meaning infection is getting better), his lung x-rays show a slight improvement, and his cough sounds much better. The assumption is that he has some bacterial pneumonia in the lower lobe of his left lung. We caught it in time with the 3 day course of IV antibiotics before it got into the blood steam (when it would have shown positive on blood cultures.)



Frequent infections in Mason's left lung because of his pulmonary vein stenosis is a concern we had going into this transplant, but our doctors here are not very concerned. The frequency should lessen significantly as Mason is able to come down and then off of steroids. And, as we saw this week and quoting one of our transplant docs, it is something "easily treated". I'll take dealing with this any day over Mason in his old state of heart failure and frequent sicknesses that would just about send him over the edge!!!



Going HOME will make keeping Mason away from germs even trickier, but as long as we do our best we hopefully can keep Mason out of the hospital and infection free.



Speaking of HOME, we will get the word on Monday. Mason has a blood draw, chest x-ray, and clinic visit w/ Dr. B. on Monday. If his lungs look good (or much better) and his white blood cell count continues going down we should be able to board a plane and head HOME to Utah within a week.



Thanks for all your prayers and positive thoughts to help Mason get over this bump in the road. I will leave you with this thought for the weekend:


"...our lives are made
in these small hours
these little wonders,
these twists & turns of fate
time falls away,
but these small hours,
these small hours still remain"
~Rob Thomas~
(Chorus from his song "Little Wonders")



Mason's journey has always been full of twists and turns, yet miraculous wonders in many ways. I truly believe Mason's fate is the plan our Heavenly Father has for him, yet He leaves room for our choices along the way. The hardest choices in this heart journey are hopefully behind us.......but certainly more twists and turns lay ahead. All these twists and turns I can handle, for I now have HOPE that many years remain of special small hours with my baby, my Miracle Mason.



11 comments:

Hope's Blog said...

The twists and turns last a lifetime, but they have made me grow and I know you have grown so much as well. Germs...hate them! I know we can't keep our little ones in a bubble, but sometimes I wish I could. Praying you and Mason are in Utah soon.

Melissa said...

What a champ he is. So happy to hear that you may get to go home soon!
Melissa
www.yesallfivearemine.blogspot.com

The Simmons Family said...

That's awesome news!! I can't wait to hear what Dr B has to say on Monday!

Bob and Joan said...

We continue to pray for safety and that you and Mason will be flying home soon.

sheila said...

Such optimistic news. I hope to see you both home soon!!
Sheila---

Kyle and Alli said...

SO CLOSE!!! I am so glad you guys caught the pneumonia so soon and were able to get it under control. We will pray that Monday shows all good news so that the doctors at Primarys can take over soon!

Mindi said...

We're cheering for good news tomorrow! And for both of you, no matter where you are, always.

xo,
Mindi and McKay

The Davis Family said...

Thinking of you and Mason always. It is great to hear you may go home within a week!! Praying for good news on your next blog.

Deborah A. said...

Summer,

We were there! We were at the hospital as well. 10 days. Such a blurry fog, I didn't think to check your blog. But now we are back. All is well.

Well, all is better.

We're working on "all is well".

How about, "All is good for today. Which is better than last week, so we'll take it."

Love,

Deborah

ParkerMama said...

Your faith is so very inspiring.

Thank you.

Tammy and Parker
www.prayingforparker.com
www.5minutesforspecialneeds.com
@ParkerMama on Twitter

Jennifer said...

I just love Mason and how he seems to be able to overcome ANYTHING!

Praying that you two will be able to go HOME soon!