Thursday, July 8, 2010

Not As Planned


Mason had transplant clinic today. We went planning to find out if and when we could go HOME, meaning really HOME to Utah, but it didn't turn out as planned. It definitely didn't turn out as we'd all hoped!!


We ran into a speed bump!


Instead of packing our suitcases to board a plane this weekend I packed us a suitcase to spend a few days at the hospital! What? Really? Yes, Mason was admitted this afternoon because he has a new nasty cough, an elevated white blood cell count, and a chest x-ray showing hazy, junky lungs. We're not sure if it's pneumonia, para-influenza, or something else, but Dr. Bernstein wanted to start IV antibiotics ASAP to kick whatever it is before it gets worse.


This is just part of what happens when my sweet little babe is so immune suppressed. He is still on very high doses of steroids because of not getting "ZERO" biopsies. This combined with his other anti-rejection meds completely wipes out his ability to fight off infections.


The good news is:
  • Mason's ECHO looked great today.
  • His O2 sats remain 97-99% even with this infection.
  • The antibody results from last week's test were good enough to allow us to go HOME.
  • As long as Mason's lungs clear up and white blood cell count goes down we will go HOME very soon, just not as soon as this weekend (which we'd secretly been planning!!!)



Please pray that Mason will get better quickly and we can go HOME to our family. Love and appreciation to all of you who continue to support our journey.



17 comments:

Mindi D said...

:( I'm so sorry, i hope he kicks the yucky stuff real SOON! Glad to hear the antibody results were good!! You'll be home in no time i know it :)
Mindi

Hope's Blog said...

Awww...I was praying you would be heading home too. I will pray like crazy that he gets the junk out of his lungs and you get to be home real soon.

The Simmons Family said...

I am so bummer for you, but so excited at the same time! You can go HOME so soon!!! He'll get rid of this "junk" and be on his way soon.

Emily@Little Forever Family said...

We will definitely keep Mason in our prayers. And praying you guys get to come home soon!!!

Kyle and Alli said...

Oh man. What a bummer. Does the thought of taking him on a plane with such a suppressed immune system scare you? Yikes!! I hope that some strong IV meds kick this real soon so that you both will be reunited with your family next week!!

Justin and Victoria Nelson said...

We are praying and thinking of you guys as well. It has been a long, but very worthwhile road for your family...
lots of love,
the Nelsons

Melissa said...

Get that boy better quick!! Good Luck!

Brooks said...

We are praying that you get to come HOME soon! Jesse is in Sunnyvale, close to you, but not close enough that he can visit, it's out of his area for now. Anyway, we continue to keep your Mason & your family in our prayers!!! God bless!

Moffitt Fam said...

Oh poor Mason!! I hope you all get to go home very soon!! How exciting!!

Gourley said...

We Love you guys.


Hope to see you soon!!!!

cici said...

Summer,
You win the "patience award" of the year and little Mason wins the "patients award":)
Can't wait to see the words WE ARE HOME on your blog and a sweet family reunited.

Amanda said...

Found ur blog a few days ago. Mason and your family have touched my heart. he is in my prayers. My husband's younger brother received a heart transplant in his early 20's. He was a heart baby too. So these stories are close to home for us.

hugs to you and Mason.

Amanda Whitley
mckinney texas

Mindi said...

So sorry to hear about the set back. Please know we are all out here pulling for you guys to go home for good!!

Much love,

Mindi and McKay

Stefenie said...

Oh poor Mason! Praying that the little guy recovers quickly so you guys can hop on a jet plane back HOME!

The Palmers said...

I hope this is a minor, short setback. I know how it feels to get more than my fair share of setbacks but I always have to tell myself - at least Scott is still here. I'd rather have a bumpy ride than no ride at all!! Keep your head up. It is all worth it!

Jamie said...

Oh, that's such a bummer! I hope he gets feeling better really soon and you can come home! Our prayers are still with you!

Summer said...

Keeping you all in my prayers!!!
Summer