Wednesday, November 25, 2009

Chest CT and Angiogram Report and Happy Thanksgiving

I'm sorry it has taken me a few days to post the results from Friday's test. Mason is still not his happy self, most of the day, due to his nasty cold. He just wants to be held and snuggled (I love every minute of it...... but nothing else gets done)!

I spoke with Michelle (Dr E's nurse) Monday morning and then Dr. Everett Tuesday morning about Mason's chest CT and angiogram. (What is an angiogram? They put a die through an IV to provide a contrast as the blood flows through the veins and arteries).

The news is: there were no surprises. It showed his left Pulmonary veins as obstructed with no blood flow.......just as his heart cath had shown. At least it showed his right PV's still open with good blood flow. Honestly, down deep I had this hope of the CT spotting even just a tiny bit of blood flow in those left veins. But, I'm not losing hope in CHOP's and Stanford's belief that they can do a heart transplant, just connecting it to his right lung.

It is my understanding that Dr. R from Stanford wanted this test to see if it was the way his heart was laying ,because possibly the heart could be pressing against the veins, thus obstructing them. That would have been nice, but that is not what the CT showed. The results were burned on a CD and over-nighted to Dr R on Tuesday. I am not sure if we will get his opinion of this test before we meet with him at Stanford ( or, really known as Lucile Packard Children's Hospital) next Thursday Dec 3rd.

For now, please continue to pray with us that our sweet Miracle Mason will yet be touched by more Miracles from our Father Above. We do want what is best for our baby, and we will forever know ultimately "what is best" will be God's will...... but I do strongly believe that we have to do all that we can to show Him we are doing our part, have faith and hope in Him, pray like it all depends on us, and then leave the rest in His hands.

On this day before thanksgiving, I want to say there is so much I am thankful for, more than I can list on one page. Although, on this day I do want to say I am so grateful for my family and for the HUGE blessing Mason is to our family. And actually, the blessings each of our 5 children are in our home. I am grateful for prayer and faith in our Heavenly Father and Savior to help get me through tough times I face in life.

Happy Thanksgiving from our family to yours!

Also I need to say a "special thank you" to our friend Tyler who gifted us his frequent flyer miles to pay for our flights to and from Stanford next week. Thanks to Tyler, Mark will also be going with Mason and I. Originally he was not going to because of the cost. And thank you to all of you who are sooooooo kind to our family!


Moffitt Fam said...

I sure hope everything goes really well for Mason in Ca. Hopefully they will be able to come up with a good plan for him! Good luck!!

Mindi said...

Thank you for the update. I have been on the edge of my seat for you. Good luck next week! It has to feel good to be DOING something to help your darling. And he is darling.

Many prayers and so much love are with you.


Hope's Blog said...

Many prayers for you and your family. I will be continuing my prayers while you are in CA. Good luck with everything and enjoy your Thanksgiving.

The G Fam said...

We are praying for your little miracle. How very sweet for your friend Tyler. I am convinced there are so many angels when you are going through trials like this, with both earthly and heavenly angels attending.

Kyle and Alli said...

Wow. What an awesome friend to help alleviate the costs with frequent flyer miles! I am so hopeful that Stanford will have some good news for Mason. Happy Thanksgiving and good luck next week!

The Tittle Family said...

Happy Thanksgiving! My family is praying for you and your family!

Cason Clan said...

Hope all goes well in Stanford. Miricles happen all the time. We are witnesses of that. Have a Happy Thanksgiving!

Becca-Ellie's mom

SanDee said...

My prayers of hope and faith for our Mayson are way beyond any thing I have ever desired or wanted.
I know he is so loved by our Heavenly Father.

Faith is what we need.

Love, Grandma SanDee