(This was one of the cute pictures taken by
Blue Lily in June. Mason was 18 months old)
On Monday (Oct 5), Mason had a cardiology check-up and ECHO. For the first time since April we we finally received some good news! Mason's ECHO showed some improvement in his heart function!! When Dr. Everett told me this my eyes instantly filled with tears. It was so wonderful and comforting to have tears of joy instead of tears of fear and heart break. Although, Dr. E did continue to say, "not normal, but better" .....this news still brought me a spark of happiness and hope. Okay, so this doesn't solve his left pulmonary vein problem or his incapability to receive a heart transplant, but at least seems to offer sweet Mason a small improvement in his quality of life for the time being. He has seemed stronger and has needed less O2's so this news definitely seemed to make sense.
It is speculated that all his heart failure meds are finally helping. I also know that because of so many prayers and fasting on Mason's behalf, our wonderful Father in Heaven has extended his hand once again to help our Miracle Mason at this time. This is a true reminder to me to keep faith and hope in the power of prayer and in the belief that 'miracles happen'. This may be small in the perspective of his whole prognosis, but even small improvements and tiny bits of good news lead to increased hope!
Mason also continues to gain weight, thanks to his G-tube. He he has gained 3 lbs since mid July when he got his g-tube. He is 19 lbs now! This is huge for Mason. It does make me sad though that most of his food/ calories he gets through his G-tube now, because he refuses food most of the time. He once was a very good eater and his heart failure has taken away his desire to eat. But, on the bright side, at least we had the g-tube put in when we did.
THE WAITING GAME
We are still waiting to here from most of the hospitals that have received Mason's medical