Monday, November 19, 2012

Update on Mason's recent pneumonia, EBV, and CMV

Just a quick update on how Mason is doing.....
The last few days he has finally been acting like he feels a little better. Since last Monday he hasn't had anymore high fevers. Just two nights ago he had a fever of 100.8, but that is  
nothing compared to the 103-104.5 fevers he had for 16 days! 

Last Tuesday when the transplant team called to tell me the results of Monday's blood work, I will admit I was quite discouraged. The count of the CMV copies in Mason's blood had gone up by 1100! (Oct. 31 it was 6300, Nov. 5 it was 6600, & Nov. 12 it was 7700). The EBV (Mono) copies have remained the same this whole time (at about 700). So, after 4 days of an oral anti-viral med which was then switched to an IV anti-viral med.....and at this point he'd been on the IV med for 10 days, Mason wasn't kicking these nasty viruses!

Today we go back to transplant clinic for an echo, more blood work, and his monthly IVIg treatment(still treating the Parvo). We will check the quantitative amounts of the CMV and EBV again as well as a test to check if Mason is resistant to the IV anti-viral med (Ganciclovir) that he is on. We had continued with the same med for this  last week even with the news of the copies going up, with the hope that it will start working, because the docs are leery to switch to another IV med. The other choices of meds to treat what Mason has could be very hard on his kidneys. I'm praying today's blood work brings good news.

On the bright side, last weeks echo showed that Mason's healthy heart has not been affected by his reason illnesses. And, the pneumonia in his left lung seems to be almost cleared up. No more crackles!! I believe this is why the last few days he has seemed to feel a little better. At least 1 sickness down, now just 2 to go! Also, I'm not sure if the IV med is giving Mason an appetite or what, but he's been eating quite a bit more this last week.....


Mason enjoyed pizza and root beer on Saturday night.

I will up date again soon. Thank you for your prayers and love.

“Even if you cannot always see that silver lining on your clouds, God can, for He is the very source of the light you seek. He does love you, and He knows your fears. He hears your prayers. He is your Heavenly Father, and surely He matches with His own the tears His children shed.” 
~Jeffrey R. Holland


cici said...

So glad little man is feeling better.
I do not like that anti-viral med. My son took the same one for Chicken Pox and he became very ill from it, instead of getting btter. I feel like it's not made for little ones with low immune systems.
I will Pray everything looks good on his next labs.
Miss your posts.

Allison said...

I am so glad you are getting to treat these nasty bugs at home! He is such a cutie and I just keep praying that his little body can kep fighting off these infections! Happy Thanksgiving to you all!