Honestly, because Mason's heart pressures were higher yesterday I was kind of expecting his rejection to be worse..... but it's not thank goodness. The Bummer is it's about the same. (The path score is It's mild rejection, mostly antibody mediated, but concerning because it isn't getting better and we've been treating it since mid March. The plan for now is to keep Mason on a low maintenance dose of Prednisone (steroid), to keep him on optimized levels of Prograf and Celcept (immune-suppression meds), and continue the monthly IVIg treatments. The team may change the plan when they get Mason's DSA (donor specific antibody) blood work back at the end of the week. If his antibody levels have gotten higher then the transplant may be more aggressive with his treatment.
I am grateful that with this rejection Mason's heart function has remained good, stable, and unaffected. Hopefully his body can get rid of the rejection soon and his little heart will be completely happy again. Thanks for all your love, prayers, and concern.
To go along with my post on Monday I just want to say PLEASE hug your kiddos a little tighter and little more often because you never know what tomorrow will bring!!!
"Always kiss your children goodnight,
even if they're already asleep."
~H. Jackson Brown, Jr.
"People say you don’t know what you’ve got
till it’s gone.
Truth is, you knew what you had,
you just never thought you’d lose it."